So this is what we've been waiting for?

It's been a while since I've updated!
Aurora has been doing SO well. She is cruising through physical and developmental therapy, and is nearly caught up to age equivalency.
She is officially crawling, pulling herself to stand using furniture, and feeds herself finger foods.
She LOVES her brother, dad, and the dogs, but is a total mamas girl :)
We could not be more proud of her.


We made another trip to Primary Children's. Jordan was finally able to make the trip with us so we went down early in the morning and spent the day in downtown Salt Lake City before her appointment. It was a much needed mini vacation.

Her appointment went smoothly and her Neurologist was impressed with her progress. Finally we discussed what I have been anticipating for months... the medication ween.

We had talked with Rory's neurologist a few months ago that if her seizures remained under control and she continued to progress, that this would finally be the appointment that we could consider Rory in remission, and ween her from the anti-seizure medication. Time to finally put this disorder in the past and do the happy dance.

We did the obligatory EEG.

Which of course Rory hated.
Then we went home and awaited the call to tell us to go ahead and break open the sparkling cider!

Unfortunately it didn't come.

The doctor said she would call the next day. She didn't. I know sometimes it takes a few days to read the EEG, so we waited through the weekend. Then the call came Monday morning, but it didn't go as planned.

"Hello Missus Adams, this is Doctor Kerr, Aurora's EEG is still abnormal. No seizure activity, but a cerebral problem towards the back of her brain. Lets plan on another MRI."

I felt so confident that we were in the clear, and I couldn't believe this was the call I had been waiting months for, I must be dreaming.

We are feeling so defeated

It's time to get back on our knees to ask for some direction, and be grateful that, no matter what, Heavenly Father will provide the peace we need.