We went down Thursday afternoon and spent the night. No loved the balcony of our hotel, he even left his mark by peeing on the carpet in our room... The joys of parenting.
We headed to the hospital around 8:30 on Valentines day. Rory's first appointment for the day was an EEG at 9:00 which she ROCKED! It was completely normal!!!!!
HURRRRAAAAYYY!!!!!
Then at 10:45 she had an LP (lumbar puncture/spinal tap) The purpose was to collect some spinal fluid so that we can have it tested to rule out any possible cause for her IS. While she was under anesthesia they also collected blood and urine to be tested to rule out genetic or metabolic anomalies.
FINALLY after we had lunch and a short break, she met with the neurologist later that afternoon.
It was a comforting meeting. Rory is catching up developmentally, she rocked her EEG, and she hasn't had any break through seizures since starting medication! The game plan is to monitor her for 3 months and continue medication. As long as there are no seizures and her EEG is normal after 3 months, she will start the med wean and be considered in remission. So in three months, she will have kicked epilepsy's TUSH!
We were all pretty bummed that we had to be away from Jordan on Valentines day. He's our rock and had to stay home to hold the fort down and work his butt off. The only thing that made up for it was all of the wonderful news we got from the appointment.
We are just struggling through each day and every trial, these tender mercies just continue to give us little glimpses of hope that, no matter the trial, even if you think you're heart is too sore to beat, it always will. We can make it through anything!!!
Eternally grateful for the support! We will continue to report all of the great news that I'm sure will be coming! :)
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